Our visit in December with the GI & nutritionist was the least painful yet. No blood work was truly a blessing. But, while she did gain weight, it’s still not enough. Then two weeks later we had a well visit and she was down two ounces, and her head shrunk. Ok, her head didn’t shrink, but the nurse at the well visit measured twice, so the last two must have been off.
Age: 19 months
Height: 2′ 4.75″
Weight: 17 lb 10.2 oz
Head Circumference: 17.76″
Even on the WHO chart that weight puts her below the 3rd percentile line. CDC = 0.03 percentile.
I was told not to worry about the two ounces, the holidays would have thrown off her eating and with me home from work she was nursing more, a good thing, but maybe less inclined to eat solids (true! She was attached to me more than before I went back to work some days! I think she’d save room to nurse.)
But all these fluctuations are a reminder that the tools to measure are imperfect, too. And different scales & different people give different results. Still. Bunny’s tiny.
Eating Schedule Changes
So big thing from the nutritionist, eat less often. Yep.
Anytime bunny asks for food, we give it to her. Made sense to us, give her as much food as she can take. But apparently, that may not allow her to get hungry enough to eat enough calories. Eating small amounts all day is how adults loose weight, we have to switch that to help her gain.
So instead of eating every hour to hour-and-a-half, we’re spacing out more like 2 hours. 3 snacks & 3 meals. Still a lot of eating.
We’re also trying some new things like yogurt and fruit smoothies (with flaxseed oil whenever I get my act together and remember to buy it.) Plus adding whip cream or cream cheese to her fruit since she’ll eat tons of fruit & the fruit has fiber. (Also still supplementing with fiber.)
All in all, we’re still just trying to up calories and keep her from filling up on water.
The Scary Part – Tests
So the GI’s main thing, more tests. Sweat test to rule out cystic fibrosis (we go tomorrow) and lower colonoscopy/upper endoscopy with biopsy to test for celiac (since blood work couldn’t tell us.)
I’m a little freaked. The sweat test is the “easy” one. They literally collect her sweat, but they have to stimulate her arms to get it, which involves attaching something to her arms. I don’t quite get all the details, but not looking forward to it.
Colonoscopy/endoscopy is supposedly quick, but they put her out. The idea of my little girl unconscious like that, scary. That’s why I’m getting the sweat test first.
The cherry on top of all this. Developmentally she’s still ahead of the curve. She’s got crazy amount of words and using 2-3 word sentences sometimes. She can handle directions for 3 consecutive tasks. She’s mastering puzzles. And so much more. But the funniest part is definitely the language.
So while other kids may outpace her in physical growth, she’s working hard at growing that little brain.
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